|
www.accessmed-msf.org/index.asp : Access to essential medicines www.adaa.org : Anxiety disorders www.adherents.com : Religious and cultural information and statistics www.adpana.com : Alcohol and drug problems www.apil.com : Association of Personal Injury Lawyers (APIL) – runs a training division (College of Personal Injury Law (CPIL)) is associate of Sweet & Maxwell publishers in Journal of Personal Injury Law (JPIL) www.appeals-service.gov.uk : Challenging decisions about social security, child support or vaccine damage www.apacure.com : Christopher Reeve Paralysis Foundation www.ash.org : Action on Smoking and Health www.avma.org.uk : Action against Medical Accidents charity (formerly Action for Victims of Medical Accidents) www.bcodp.org.uk : British Council of Disabled People – national umbrella organisation run by disabled people www.bereavement.org.uk : Information, support and standards in bereavement care www.bibic.org.uk : British Institute for Brain Injured Children – assessment, programmes and support for children with learning difficulties and families www.bicma.org.uk : Bodily Injury Claims Management Association (insurance funded rehabilitation), includes contact for the Case Management Society of the UK (CMSUK) www.b-i-r-d.org.uk : Brain Injury Rehabilitation & Development charity providing ‘developmental reflexive rehabilitation’ for organic brain dysfunction (brain injury and learning disabilities) www.bnpa.org.uk : British Neuro-Psychiatry Association: exchange of information and inter-disciplinary promotion across psychiatry, neurology, neuropsychology and related neurosciences www.brainandspine.org.uk : Brain & Spine Foundation charity providing education and research www.brake.org.uk : Brake – road safety charity seeking prevention of death and injury by education and campaigns, and providing care for bereaved and injured through helpline, support services, police-distributed literature and Road Safety Week www.brt.org.uk : Brain Research Trust charity funding research into neurological diseases and conditions www.cae.org.uk : Centre for Accessible Environments (charity providing information and liaising on access) www.cafamily.org.uk : Contact A Family – support for families with disabled children www.careandrepair-england.org.uk : Care & Repair – charity to improve housing and living conditions of older people and those with disabilities www.carersuk.org : Carers UK – support for carers www.cbituk.org : Child Brain Injury Trust charity – helplines, support groups, activity holidays for brothers and sisters, small grants scheme (Hand Up) www.cebm.net : Centre for Evidence Based Medicine – education and support on EBM www.cebmh.com/ : Centre for Evidence Based Mental Health – education and research www.clearinghouse.net/cgi-bin/chadmin/viewcat : Addiction www.clinicalevidence.org : British Medical Journal site on 200 conditions and 2000 treatments, including stroke, absence seizures, epilepsy, headaches and migraine, multiple sclerosis www.clinical-skills-net.org.uk : Clinical Skills Network for students and clinicians www.cmsrehabuk.co.uk : Rehab UK are part of the Rehabcare Group who support people with disabilities throughout Ireland and the UK. www.cmsuk.org : Case Management Society of the UK – non-profit association of case managers promoting quality and standards www.Connects.org.uk : portal for mental health and learning disabilities operated by Mental Health Foundation and Foundation for Learning Disabilities www.cpil.ac/ : College of Personal Injury Law (training division of APIL) www.crb.gov.uk : Criminal Records Bureau – helps employers identify who may be unsuitable to work with children and vulnerable adults www.crusebereavementcare.org.uk : Support for those affected by a death www.csci.org.uk : Commission for Social Care Inspection www.dda.org.uk : Disabled Drivers’ Association – campaigns to improve conditions for those with mobility problems (e.g. Blue Badge abuse and congestion charging) www.ddmc.org.uk : Disabled Drivers’ Motor Club – lobbying for disabled drivers and passengers, publishes Disabled Motorist magazine www.dh.gov.uk : Department of Health www.differentstrokes.co.uk : Different Strokes – charity for and by younger stroke survivors www.disabledworkers.org.uk : Disabled Workers Co-operative – find a local worker www.disclosure.gov.uk : The Disclosure Service – government site for Criminal Records Bureau searches, particularly for those working with children and vulnerable adults www.dls.org.uk : Disability Law Service – charity offering free advice to disabled people, family and carers www.drc.org.uk : Disability Rights Commission – equality body monitoring Disability Discrimination Act www.drowsydriving.org : Drowsy driving www.each.nl : European Association for Communication in Healthcare (publishes the journal Patient Education & Counseling) www.ebissociety.org : European Brain Injury Society (EBIS) – promotes public awareness, networking, training, promotes patient and family groups, lobbies for epidemiology and other research, publishes head injury evaluation documents www.encephalitis.info : Encephalitis Information Resource – research, information, support www.epilepsynse.org.uk : National Society for Epilepsy (NSE) – information, support, research, epilepsy care services www.epilepsy.org.uk : Epilepsy Action (British Epilepsy Association) – helpline, seminars, support, Sapphire Nurses, ‘Take Control’ campaign, discounts for Seizure (European Journal for Epilepsy) www.fledglings.org.uk : Fledglings – not-for-profit product search service for children with special needs www.foil.org.uk : Forum of Insurance Lawyers – exchange of information and lobbying on insurance litigation www.gsdnet.org.uk : Group for Solicitors with Disabilities (GSD) www.guardianship.gov.uk : Public Guardianship Office www.harcourt-international.com/ : Elsevier publishes Seizure (European Journal for Epilepsy) www.hda.org.uk : Huntington’s Disease Association www.headaches.org : Headache www.headinjury.com : Brain Injury Resource Center (operated by Head Injury Hotline, includes journal links) www.headway.org.uk : Headway – the brain injury association (national charity) www.healthcarecommission.org.uk : Regulation, inspection and standards in NHS and independent healthcare www.hodis.org.uk : National Disabled Persons Housing Service – promoting housing resources for disabled people www.ics.ac.uk : Intensive Care Society – association for clinicians working in critical care www.i-l-a.fsnet.co.uk : Independent Living Alternatives – provides full time personal assistants to disabled people who wish to live in their own home www.ilf.org.uk : Independent Living Funds – financial support to enable disabled people to live in the community rather than residential care www.injuryprevention.com : International journal for health professionals and others in injury prevention www.internationalbrain.org : International Brain Injury Association (IBIA) – publishes quarterly International NeuroTrauma Letter, professional members receive Brain Injury journal www.ipsea.org.uk : Independent Panel for Special Education Advice – free independent advice, tribunal representation and appeals, professional second opinions www.jr2.ox.ac.uk/bandolier/ : Bandolier – health digest, free journal abstracts, good links www.listening-books.org.uk : Postal audio books library www.lmca.org.uk : Long Term Medical Conditions Alliance www.lww.com : Lippincott Williams & Wilkins – publishes Journal of Head Trauma Rehabilitation www.medicalert.org.uk : Charity providing emergency medical information about people’s conditions www.meningitis-trust.org.uk : Meningitis Trust (national charity) – prevention, quality care, support for life www.migrainehelp.com : Migraine www.migraine.org.uk : Migraine Action Association ‘bridging the gap between the patient and the medical world’ www.migrainetrust.org : Migraine Trust – research and patient support www.mssociety.org.uk : Multiple Sclerosis Society – helpline, support, training, respite care centres, grants and research funding www.narcolepsy.org.uk : Narcolepsy Association UK (UKAN) – promote awareness, local self help groups, research, have narcolepsy recognised as disability by social services, publishes newsletter Catnap www.ncil.org.uk : National Centre for Independent Living – resource on independent living and direct payments for people with disabilities and those working in the field www.netofcare.org : Help for carers www.neurology.org : Neurology journal, official publication of the American Association of Neurology (AAN) www.nhsdirect.nhs.uk : NHS Direct – health encyclopaedia, best treatments, self help www.nice.org.uk : National Institute for Health and Clinical Excellence (NICE – from 1 April 2005) – national guidelines on illness prevention and health promotion www.ninds.nih.gov : National Institute for Neurological Disorders and Stroke – ‘Neuroscience in the New Millennium’ biomedical research funding www.opportunities.org.uk : Employment Opportunities for People with Disabilities – helping people with disabilities find and retain work, support and information for employers www.outsiders.org.uk : Shy, disabled and socially isolated people aiming to live life to the full (note that SPOD, the relationship and sexuality charity for disabled people, no longer exists) www.patients-association.com : The Patients’ Association – listening to patients, speaking up for change www.peopil.com : Pan European Organisation of Personal Injury Lawyers – to improve communication and co-operation between European jurisdictions on personal injury law www.phabengland.org.uk : PHAB – national charity dedicated to promoting and encouraging the coming together on equal terms of disabled and non-disabled people to achieve an integrated and inclusive society www.radar.org.uk : RADAR – the disability network (campaigning and advising national charity) www.remap.org.uk : Technical equipment for disabled people – custom-made aids www.remploy.co.uk : Interwork Employment Services (support for employers, workers and jobseekers); Ethical Enterprise (products and services) www.respond.org.uk : Challenging vulnerability and sexual abuse in the lives of people with learning disabilities www.resus.org.uk : Resuscitation Council UK – education and references to healthcare professionals and the general public on resuscitation practice www.riding-for-disabled.org.uk : Giving disabled people the opportunity to horse ride or carriage drive to benefit their health and well being www.roadpeace.org : National charity for road crash victims and bereaved families – helpline, research, support and campaigns (including international) www.rospa.co.uk or www.rospa.com : Royal Society for the Prevention of Accidents – information, advice, training, resources, campaigns www.shelter.org.uk : Homelessness and housing charity – housing advice, campaigns, working with housing sector www.sig.net/~allergy/welcome.html : Allergies www.special-needs-kids.co.uk : Advice and support on products and services for children with special needs www.spinalcord.org : Spinal Cord Injury Association www.stroke.org.uk : The Stroke Association – research, campaigns, information, support, Stroke News www.sweetandmaxwell.co.uk : Sweet & Maxwell site, publishes Journal of Personal Injury Law in association with APIL www.tandf.co.uk/journals : Taylor & Francis Group – publishes Brain Injury and other neurology and neuroscience journals www.tcf.org.uk : The Compassionate Friends – support for parents and family after the death of a child www.theabn.org : The Association of British Neurologists – promoting education in and advancement of the neurological sciences www.the-sequal-trust.org.uk : Specialised Equipment Aids for Living – bridging the gap between communication and disability www.3hfund.org.uk : Help the Handicapped Holiday Fund – subsidised group holidays for physically disabled children and adults with volunteers (to enable family respite) www.ukabif.org.uk : United Kingdom Acquired Brain Injury Forum – advises the All-Party Parliamentary Group on brain injury, the general public, organises events and conferences www.uk-sobs.org.uk : Survivors of bereavement by suicide www.vitalise.org.uk : Vitalise – essential breaks for disabled people and carers (formerly the Winged Fellowship Trust) at accessible centres in Cornwall, Southampton, Essex, Nottingham and Southport www.youramazingbrain.org.uk : Wellcome Trust and At-Bristol site: explore your brain, take part in real life experiments, test yourself with games, illusions and brain benders
Back to the Top
|